{"id":156,"date":"2021-06-11T10:45:18","date_gmt":"2021-06-11T10:45:18","guid":{"rendered":"https:\/\/bf2021.wpengine.com\/?page_id=156"},"modified":"2025-02-26T14:32:21","modified_gmt":"2025-02-26T14:32:21","slug":"welcome-test-page","status":"publish","type":"page","link":"https:\/\/www.caregiversupportcommunity.org\/","title":{"rendered":"Join the Caregiver Support Network: Connect, Learn, and Get Support"},"content":{"rendered":"

Welcome to our Caregiver Support Community!<\/strong><\/p>\n

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CaregiverSupportCommunity.org is an online caregiver support group for patients, friends, and families affected by a rare disease. It is a welcoming and supportive community designed for close friends and family members who are providing care for someone with a rare disease or condition.<\/p>\n

Our mission at Ben\u2019s Friends is to provide caregiver support and ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.<\/p>\n

The patients on any one of <\/span>Ben\u2019s Friends communities<\/span><\/a> will have specific things in common because of their disease.\u00a0 Meanwhile, their caregivers may have things in common with other caregivers, independent of disease. CaregiverSupportCommunity.org is a caregiver support community where caregivers can share experiences with, and support each other.\u00a0 <\/span><\/p>\n

Geographically, caregivers from a particular region may find it helpful to share and explore resources, supports and agencies available to them. There is strength in numbers: experienced caregivers can help those new to the role. And new caregivers can give those with a wealth of experience, a refreshed sense of purpose and commitment. Everyone — rare disease patients and caregivers — wins.<\/span><\/p>\n

CaregiverSupportCommunity.org creates a safe virtual space where patients and family members as young as 12 can find information, engage in discussions, share their experiences, and support one another. Members come from many backgrounds. Some have a strong religious faith, and others no faith; some are children and others adults, rich and poor, graduate educated or taught by life. Our common denominators are that we share a life journey, and we try to help each other.<\/span><\/p>\n

Although medical doctors occasionally visit, medical professionals do not routinely support the site. No one here can diagnose you or dictate your treatment choices. We might inform your choices by sharing individual experiences and information developed by study as lay people. But CaregiverSupportCommunity.org is not intended to replace the advice or treatment of licensed medical professionals. Readers should validate any information they take away from here, against the experience of a licensed medical doctor. Site owners and moderators are not legally responsible for the accuracy of information shared on the site.<\/span><\/p>\n

Read More…<\/a><\/strong><\/p>\n